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Many people question whether cannabis oil can be an effective treatment option for brain cancer moving forward. Researchers are currently experimenting with different ratios of CBD/THC to examine the therapeutic effects on glioma cells in animals and human patients. In future I would like to see this explored further with additional clinical trials for lower grade tumours and radically excised malignant brain tumours.  Trials are currently underway by GW Pharmaceuticals on glioblastoma brain tumours. Please watch my video recording from ITV News and let me know what you think. In this video Dr. Wai Liu is being interviewed about his research in this area. http://youtu.be/CemX3-oGSQ4 Here is some of the research by Dr. Wai Liu and his colleagues. Dr. Liu is based at the teaching hospital where I had my craniotomy- St. George's University of London. http://www.sgul.ac.uk/media/latest-news/study-shows-non-hallucinogenic-cannabinoids-are-effective-anti-cancer-drugs http://m.mct.aacrjou...

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2367001/ http://www.mdanderson.org/newsroom/news-releases/2012/metabolic-protein-launches-sugar-feast-that-nurtures-brain-tumors.html http://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path%5B%5D=3688 http://m.fasebj.org/cgi/content/meeting_abstract/27/1_MeetingAbstracts/863.1 http://m.fasebj.org/content/29/1_Supplement/725.22.abstract?sid=3300a1e5-62f2-4ef1-bbb3-62b2635bb54b http://www.sciencedirect.com/science/article/pii/S2213231714000925 http://www.ncbi.nlm.nih.gov/m/pubmed/25301680/ http://www.ncbi.nlm.nih.gov/m/pubmed/24598140/?i=2&from=%2F25301680%2Frelated http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0065522 http://www.ncbi.nlm.nih.gov/m/pubmed/22563484/ http://youtu.be/gONeCxtyH18 http://www.ncbi.nlm.nih.gov/m/pubmed/24615175/ http://www.ncbi.nlm.nih.gov/pubmed/24503133 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4063533/ http://cen.acs.org/articles/93/i12/Ta...

I was asked recently if I could write an article detailing my personal experience of a typical day living with my particular disability/illness. The picture below is hilariously appropriate for me as a young man who was once very active. In my situation illness and disability go together as I have an acquired brain injury caused by a malignant brain tumour. My tumour was discovered after a brain haemorrhage on a train on April 13, 2013 followed my multiple grand mal seizures in hospital. I would go on to receive brain surgery to remove as much tumour as possible followed by chemotherapy and radiotherapy.  Overall my 'acquired brain injury' is mentally and physically disabling and debilitating. I have some relatively good days where I can surprise a lot of people including myself in a big way, but also some bad days with migraines, fatigue, depression, and increased seizure activity. It can be completely random or it can be triggered by over stimulation in that part of my brain....

I had a seizure at about 3am in my sleep. It woke me up and I was conscious with no control this time, strange. I made a lot of yelping noises that woke my mum up and my right side was going a bit mental having a party on it's own. I felt very dizzy and still do a bit and the let side of my head feels very hot. I think maybe it was my own fault as I've been staying up later.  I'm glad I know it not the tumour because I would be panicking now otherwise. I was snappy and verbally aggressive to my mum which I apologised profusely for not long after. I get like that often after seizures and it's horrible because that's the complete opposite of who I am. I get a lot of strong mood swings where I can get very snappy and agitated and want to be left alone. I know I just need to recover and get on with it and that's what I plan on doing. This is my reality now, at least it's happening at home more than it does in public. I have only had small seizures in public and ...

Scan results were encouraging, I've moved from 3 monthly scans to 6! My seizure activity has also been improving gradually so I'm hoping to get out the house again this evening. :-)

Brings back all these thoughts. I wrote this when I felt overwhelmed and it actually helped me. No change on my MRI scan will, temporarily at least, release a lot of these feelings. 

Yesterday I finally had my MRI scan but it was different to the scans I usually have. I had an MRI spectroscopy scan which I think all brain tumour patients should have the option of having. I'm exhausted now and feel quite depressed as I keep getting dizzy spells and migraines so I'll be lazy and share this information about MRS. It is from Wikipedia BUT I have checked it thoroughly for accuracy. It's surprisingly quite a good description. They don't do MRS at The Royal Marsden which is one of the main reasons I moved my treatment to Charing Cross.  Magnetic resonance spectroscopy (MRS), also known as  nuclear magnetic resonance (NMR) spectroscopy , is a non-invasive, ionizing radiation free analytical technique that has been used to study metabolic changes in brain tumors, strokes, seizure disorders, Alzheimer's disease, depression and other diseases affecting the brain. It has also been used to study the metabolism of other organs such as  muscles . In the case o...

I'm wondering if you can really tell much from CT scan results. I've lost count of how many pills I've taken today to cope and I'm feeling really unwell.  I'm not sure I can wait until Wednesday for my MRI scan because I'm feeling so light headed and I've got a funny taste in my mouth. I've been sleeping a lot today and I'm going to try and sleep again now to cope. I really don't know what to do. 

I've been asleep for most of today after suffering with vertigo alongside terrible fatigue this morning. I am now starting to feel less dizzy but I have significant heat and pain where my craniotomy scar is.  My headaches are being controlled relatively well with regular paracetamol which is encouraging. I'm still concerned however because something definitely doesn't feel right and I'm in a lot of discomfort. I'll just have to sit tight and wait until Wednesday! Anonymous response from another brain tumour patient about my situation with the MRI scan-  'Apparently only a treating consultant can order an MRI - I've had the same problem which is partly why I don't live in the UK anymore. Everyone goes on about how wonderful the NHS is, but I'd be dead by now if I wasn't so pushy. Do you have someone watching you at home? I would bombard your oncologist and neurologist's secretary with calls monday and till they're on it. failing that, back...

As you can see even my hospital bed was surprised that I couldn't get an 'urgent' MRI scan until Tuesday at the earliest, even if I had suffered another brain haemorrhage! The doctor I saw in A & E added to 'keep in mind it's also the weekend and we don't operate MRI equipment at weekends.' I can have as many CT scans as I like though because they are much cheaper and the NHS is trying to cut costs. I won't name the hospital because I could tell the staff were just as frustrated as I was by it all! Kind of regretting this post as I love the NHS! It's a massive shame though and quite sad.  Luckily I feel as though I can hang on until my routine MRI appointment on Wednesday. It will be my first scan at the brilliant Charing Cross Hospital. I'm actually looking forward to it in a bizarre way despite being anxious as a result of my recent symptoms. 

I realise that this isn't the typical, ultra positive, sometimes humourous cancer blog that I see from others but I do have an important message that can sometimes get lost: NEVER BE SCARED TO SHOW THAT YOU ARE SCARED. This doesn't mean looking for sympathy but to me it means showing all sides of cancer so that people can show empathy through greater understanding of how you feel day to day. This is challenging because obviously you would want to be seen as you and not a disease which is completely understandable and the right attitude to have!  To me it's about balance, I post positive and negative. At the moment it's negative which probably isn't great to read but when my symptoms are under control I do some really fun, positive stuff! Willow Foundation sent me to the Arsenal training ground not long before my bday for example and it was an incredible experience! I have had a lot of great experiences and I'm very thankful. At the moment my headaches and fatigu...

I tried to go outside and now I'm in bed exhausted in a lot of discomfort. I couldn't even walk in a straight line and felt as though I was going to feint. Now I'm sat in bed and I feel as though I'm on a boat, something isn't right here. I have a scan for next week but I'm trying to get it done sooner.  I didn't look too confident on my way out. :-(

I'm collecting too many of these! Just came back from hospital, feeling very groggy with a splitting headache after an unusual seizure but the CT scan results showed no bleeding. I had a feeling this might happen after nearly having a seizure in public a couple of days ago, stumbling around confused. I hope to get my MRI scan over and done with soon because I still have worries and concerns.