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Yesterday I added grass fed lamb's brains to my ketogenic diet. Because we are squeamish about eating brain in this country my local butcher gave me 6 quality sheep's brains for free! I read an interesting article recently about this recently... http://www.telegraph.co.uk/foodanddrink/foodanddrinknews/11364723/Eating-offal-will-the-British-ever-fall-in-love-with-brains.html I also found some videos of Gordon Ramsey (with Hugh Fearnley-Whittingstall) and and another video from Heston Blumenthal cooking brains. I understand brain is a delicacy in many top restaurants around the world so I was even more interested in trying it. Here are the videos: http://youtu.be/hb1YFPLany0 http://youtu.be/X4tItqWIKe4 Obviously I would make KETO versions of these recipes! Let's think about this... Sometimes the unorthodox approach is perhaps the most sensible. Consider this:  Brains are built from large amounts of selected fatty acids and specialist components that when eaten could have a po...

My local screening of a patient led documentary film project by Dominic Hill Featuring a live Q & A session with:  Adam Afriyie- MP Windsor, Maidenhead Andrew Scarborough (host)- 2 year brain cancer Survivor, ketogenic diet trials patient advisor at Charing Cross Hospital. Jane Mclelland- 16 year stage 4 cervical cancer survivor and patient advocate for access to medicines. And more including the Brain Tumour Charity, Brain Tumour Research, and health professionals!  Adam Afriyie has recently shared his thoughts on this event and on the current situation with brain cancer. Please read: http://adamafriyie.org/index.php/2015/03/18/bravery-in-the-face-of-an-awful-disease/ Also please sign this petition if you can to give terminal brain cancer patients more treatment options.  http://epetitions.direct.gov.uk/petitions/74463

I haven't updated my blog in a while as I have been busy collecting my thoughts from a busy few weeks while planning some exciting future endeavours.  The other consequence of having been so busy is that I'm suffering more from fatigue at the moment, meaning that sustained concentration can become challenging, but I digress... This past month has been especially eventful, productive, and exciting. I have decided to detail a summary of my experiences in a short series of posts.  I had the immense pleasure of attending The London Football Awards and delivering a speech about my special day with Willow in August last year. The difference in how I feel mentally and physically now compared to then is astonishing to me when I look back. I love football so I was in heaven at such a grand event surrounded by such recognisable faces.  Football has always been a great escape to me at times when I felt like a zombie thanks to neurological issues and side effects from epilepsy medica...

Exercise and brain cancer is a very complex subject that I would like to revisit later. I am able to function fairly well now but it was a very long journey with many uncertainties. Walking up and down the hall at home used to be strenuous exercise for me not long ago and stairs was a nightmare. I still can't believe what I can do now. I continue to be wary of tumour recurrence after being informed by my oncologist it would probably be 'sudden, unexpected, and will likely leave me with right sided paralysis because of where the tumour was located' but that is why I'm trying all I can to keep it away! I seem to be doing alright so far, let's hope that continues.  Ketosis has become an exciting journey and I love how it alleviates and manages a lot of my symptoms when I get it right but exercise can be a challenge (trying to maintain 'therapeutic ketosis for cancer management). This morning I decided to do a little experiment (my meds often send me into a deep sle...

This is finally in the news thanks to the Surviving Terminal Cancer film!  http://www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/11424747/The-professor-who-cured-his-cancer-with-a-cocktail-of-everyday-pills-and-20-years-on-remains-disease-free.html Please sign this petition so we can save more lives like this.  We want to ensure innovative therapies get to brain tumour patients as quickly as possible.  http://epetitions.direct.gov.uk/petitions/74463?dm_t=0,0,0,0,0

Have you noticed the similarities between skin cancer and brain cancer? The darker a person's skin, the less likely they are to get both cancers. You are unlikely to see a dark skinned black person with a brain tumour. Both cancers have temozolomide as treatment. I have seen cases where a certain drug that is used primarily for skin cancer has had a beneficial response for brain cancer. The same is true for immunotherapy. Vitamin D3 has profound anticonvulsant properties when you have the correct amount for your body, if you are deficient you do worse. It is a well known fact that many Asians and North Africans are deficient in vitamin D so the earlier fact about skin pigmentation is largely ignored for brain cancer when you look at the stats. Just a few thoughts I've had that I wanted to share. Some 'controversial' opinions I have. Here is some possible evidence for this:  'The risk for primary brain tumors in Caucasians is higher, as much as two-fold with gliomas,...

I feel terrible writing this after hearing desperately sad news yesterday about a friend but today I have felt phenomenally good, better than even before I had cancer at times. I hope this isn't a one off and I hope this post doesn't upset anyone else with a BT. Maybe it can give some people hope and encourage them to keep persevering by taking control. My mind suddenly feels very sharp, my speed of thought has dramatically improved and I feel more alert, being able to maintain concentration and sustain greater clarity of thought throughout the day. I have also been fairly active physically as well as mentally.  This improvement has coincided with a few alterations I made to my diet recently, I didn't expect this kind of dramatic response if I'm honest. I was drowning in a sea of despair for so long thinking I would never get my life back due to these invisible disabilities but I'm starting to feel more and more like the old me again. I hope I'm not tempting fat...