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I've decided to reduce my epilepsy meds again because life is short and I don't trust neurologists. I don't advise anyone else to do this but the further I get into ketosis the more intense the side effects of the medication hits me. I don't know if that's coincidence or not. I'm pretty sure this isn't tumour progression because it always follows the same pattern. I'm discussing this soon with my neurologist but I know my brain better than they do in many ways. I always feel great before I take keppra and the reaction I get after taking it now is often so extreme that I get searing headaches that make me feel like I'm going to pass out and never wake up again. They call this a risk but it's an easy choice for me. The best decision I ever made in the past was completely coming off Epilim over time so I'm gradually going to reduce Keppra and see what happens. Of course it's scary and I'm bound to get some kind of withdrawal but the hars...

I'm feeling very tired today after being very active recently (relatively speaking). It's been a funny yet welcome feeling this past few weeks being virtually free of migraines and having significantly reduced seizure activity. I've reached my blood ketone and blood glucose goals now and my levels consistently hover around these figures below which is very satisfying.  The most satisfying thing about it for me is that I know there are improvements I can still make. I'm ready to really push on with this by getting much better sleep, making my own shower gells, hand soap, toothpaste, and shampoo, and monitoring exercise more effectively. I already use a natural toothpaste but I can improve it. I'm really enjoying experimenting with this diet more now, it used to be a chore because I needed to realise how to make it work for me as an individual. Now that I have I really enjoy it. The picture below is you, me, and everyone. The biggest mistakes I made when I started the...

I  have been a huge Arsenal fan for as long as I can remember, it's just a part of my life and always will be.  After my brain cancer diagnosis in April 2013 I was forced to quit my studies, move back with family, and lost a large part of my independence through having poorly understood invisible disabilities. Watching the football had become a real escape when times got difficult, stuck in bed with migraines, seizures, and constant fatigue.  With diet, rest, and medication my seizures are largely controlled now and I feel lucky to still be here because this is a really devastating type of cancer and my family feared for my life after I suffering the brain haemorrhage on the train that led to my eventual diagnosis. I know I still have difficult times ahead and the only certainty is uncertainty but I can take time to appreciate the 'small things'. A few weeks after my operation I was told my cancer was aggressive and incurable. I suffered with understandable bouts of depre...

My most effective epilepsy medication. It controls my appetite, blood sugar, raises blood ketone readings and controls my seizure activity. This is my last MCT powder sachet, back on MCT oil tomorrow. It's a shame because I can take the powder out with me and it's great after exercise.  http://www.youtube.com/watch?v=x4_-o7W7Fv0

Emails have been sent, more phone calls will be made this week. I am aiming to improve nutritional support for brain cancer patients in this country one step at a time. It is crucial that we do not downplay the importance of this.  I will have a discussion (preferably over the phone or in person) about nutritional support for brain tumour patients with The Brain Tumour Charity and hopefully also Danone UK (they own Nutricia).  As an informed cancer patient with a degree in nutrition I am greatly concerned by the poor nutritional advice I received from registered dieticians, in particular the recommendation and prescription of high sugar drinks during treatment. I have a considerable, growing body of evidence that supports the need for radical change and I believe this is possible with small changes over time. The easiest way to start is with these high sugar 'build up' drinks (eg. Fortisip, Ensure, Complan etc.) recommended for brain cancer patients. Radiation oncologist Colin...

I realise I haven't written much about Christmas. I had a really lovely day with family and although it was exhausting I enjoyed it very much. The previous Christmas I wasn't feeling at all well so it felt incredible being able to be so much more alert than I used to be.  At the same time I am in touch with others in my situation and sadly I hear a lot of upsetting news so Christmas was also a time for somber reflection for me.  On a positive note I was able to play with my nephew which I couldn't do last year and I had cuddles with my neice. :-)

I think more swimming pools need to be available for anyone who has had any kind of acquired brain injury. Any kind of exercise in the pool is great and I think there needs to be more support for people in my situation and worse. Being in the swimming pool has allowed me to adjust exercises to my needs and I feel as though any support in this area is not well known. It becomes like a little secret for some reason. I'm very excited about going swimming tomorrow for a second consecutive day which is really tough for me. I always make sure I take precautions, take things slowly and rest, but I still feel very fortunate.