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Exercise and brain cancer is a very complex subject that I would like to revisit later. I am able to function fairly well now but it was a very long journey with many uncertainties. Walking up and down the hall at home used to be strenuous exercise for me not long ago and stairs was a nightmare. I still can't believe what I can do now. I continue to be wary of tumour recurrence after being informed by my oncologist it would probably be 'sudden, unexpected, and will likely leave me with right sided paralysis because of where the tumour was located' but that is why I'm trying all I can to keep it away! I seem to be doing alright so far, let's hope that continues.  Ketosis has become an exciting journey and I love how it alleviates and manages a lot of my symptoms when I get it right but exercise can be a challenge (trying to maintain 'therapeutic ketosis for cancer management). This morning I decided to do a little experiment (my meds often send me into a deep sle...

This is finally in the news thanks to the Surviving Terminal Cancer film!  http://www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/11424747/The-professor-who-cured-his-cancer-with-a-cocktail-of-everyday-pills-and-20-years-on-remains-disease-free.html Please sign this petition so we can save more lives like this.  We want to ensure innovative therapies get to brain tumour patients as quickly as possible.  http://epetitions.direct.gov.uk/petitions/74463?dm_t=0,0,0,0,0

Have you noticed the similarities between skin cancer and brain cancer? The darker a person's skin, the less likely they are to get both cancers. You are unlikely to see a dark skinned black person with a brain tumour. Both cancers have temozolomide as treatment. I have seen cases where a certain drug that is used primarily for skin cancer has had a beneficial response for brain cancer. The same is true for immunotherapy. Vitamin D3 has profound anticonvulsant properties when you have the correct amount for your body, if you are deficient you do worse. It is a well known fact that many Asians and North Africans are deficient in vitamin D so the earlier fact about skin pigmentation is largely ignored for brain cancer when you look at the stats. Just a few thoughts I've had that I wanted to share. Some 'controversial' opinions I have. Here is some possible evidence for this:  'The risk for primary brain tumors in Caucasians is higher, as much as two-fold with gliomas,...

I feel terrible writing this after hearing desperately sad news yesterday about a friend but today I have felt phenomenally good, better than even before I had cancer at times. I hope this isn't a one off and I hope this post doesn't upset anyone else with a BT. Maybe it can give some people hope and encourage them to keep persevering by taking control. My mind suddenly feels very sharp, my speed of thought has dramatically improved and I feel more alert, being able to maintain concentration and sustain greater clarity of thought throughout the day. I have also been fairly active physically as well as mentally.  This improvement has coincided with a few alterations I made to my diet recently, I didn't expect this kind of dramatic response if I'm honest. I was drowning in a sea of despair for so long thinking I would never get my life back due to these invisible disabilities but I'm starting to feel more and more like the old me again. I hope I'm not tempting fat...

I've been thriving on my own version of a restricted ketogenic diet recently and learned a lot from attending this event last year so I thought I would share one of the videos (they have just become available online). :-) http://youtu.be/F3VQlWWDtiw The only difficulty I noticed personally when adapting to strict keto is that humans can have many more food intolerances than mice and many brain cancer patients are on anti convulsants so you have to play around with the diet (and often medication!) to find out what works for the individual. It is also easier to control a mouse's external environment.  I noticed a number of migraine triggers relating to commonly recommended foods on the diet (eg. Cheese, double cream, dark chocolate, ground almonds, even coconut oil!). With most of these foods I am actually quite concerned that they are recommended in the first place but I won't go into that! Since I eliminated those foods and replaced them with different animal fats from gras...

I saw my new neurologist early this morning. He has been so impressed with my success on the ketogenic diet that I have just been offered a role as a patient advisor on a ketogenic diet trial for epilepsy in adults.  I am now down to 500mg Keppra twice a day from being on 1,750mg twice a day PLUS 600mg Epilim twice a day 2 years ago thanks to diet change and being stubborn.  I have achieved this on my own fighting against neurologists who wanted me to constantly increase my medication and who didn't support my 'risky' methods. Now I finally have the support I need from a forward thinking neurologist and treatment team. I'm enthusiastic about being given the opportunity to help others, making the ketogenic diet work for them, making it enjoyable, and without it feeling like a chore. I find this incredibly rewarding because I was very scared in the past doing this all by myself with no support and I made a lot of potentially dangerous mistakes along the way.  There will s...

Last night I was asleep by 9pm. I will do the same tonight. Going to sleep late is a type of stress that I don't think is good for the brain. I used to stay up late and had no sleep routine.  This morning I awoke at 5:30am feeling energised and stres free. I had a nice little workout and a stretch while I was up and felt the best I have in a long time. I also benefit at this time from my medication being weakest at the point as I take it at 9am and 9pm every day. This meant I could exercise and be awake rather than feel the strong effects of the medication. Trying to exercise before taking a sedative is much easier than after, trust me!!  :-)

The acid/alkaline diets for cancer make me angry because there is no real science behind it and it goes against basic biology. Please read this if you still think the flakey (at best!) pseudoscience has any substance.  http://chriskresser.com/the-acid-alkaline-myth-part-2

This week I've felt fantastic and in many ways I actually feel much healthier than before my cancer diagnosis which is great! My energy levels have increased dramatically and yesterday I was very excited because I had lots of energy. It was also fantastic progress to start resistance training which I couldn't do before. :-) I feel as though every day I'm feeling stronger and more alert and I'm very confident about continuing to reduce this medication. It's an incredible feeling to be able to do all the things I thought I wouldn't be able to do again. Yesterday I was invited by The Brain Tumour Charity to watch the premiere of 'Surviving Terminal Cancer' in London at BFI Southbank. It was very encouraging to see and hear from long term survivors of the most deadly types of brain cancer and it helped to reaffirm things that I am doing currently to keep this tumour at bay. It was an overwhelming experience (in a good way mostly!) but it's hard to just w...

First day with no headaches! All I did was significantly reduce salicylates in my diet. Now I've also managed to reduce Keppra more so if my next scan is positive hopefully in a few months I can get off it completely.  For a long time I thought I was having partial seizures but I was actually having migraine auras which are now largely controlled. Amazing! I'm actually quite angry in a way that I have had to do this all on my own because I know what the potential risks could have been. I was constantly recommended to increase medication and was treated as if I was crazy. I will be laughing at those neurologists who told me this would be impossible. It's very difficult, but not impossible. I wouldn't recommend it to anyone else though unless you're 100% sure you know what you're doing. The neurologist I see now fully supports me. In my experience most of them don't treat brain tumour related epilepsy differently and don't take diet seriously but they shou...